Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
RARE and Under-Funded
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Industry insights
Letters
Medical
News
Patient voice
RARE employment
RARE parenting
RARE ramblings
RARE REV-inar
Reviews
Science & tech
Sunday sessions
Turning the tide for rare disease
THE PEOPLE OF RARE
Digital Spotlight
RARE Reports
Resources
Charity Partners
WORK WITH US
Rare Revolutionaries
Community Gallery
Rare Youth
SHOP
Latest Edition
RARE and Under-Funded
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Author:
admin
Letters
Sarcoma Awareness Month: Sarcomas demand urgent awareness and education to prevent poor outcomes
By admin
24 July 2024
Turning the tide for rare disease
I am Celine Dion: The stiff person syndrome community reacts to the release of Dion’s documentary
By admin
22 July 2024
RARE News
The CMT Research Foundation’s 2024 Global CMT Research Convention to gather renowned scientific experts and patients to discuss status of treatments and cures for Charcot-Marie-Tooth (CMT) disease
By admin
19 July 2024
RARE News
NHL All-Star Ryan Getzlaf returns to the links for the 13th Annual Getzlaf Golf Shootout on September 13-14, benefiting CureDuchenne
By admin
17 July 2024
Industry Insights
Early access to medicines: A picture is worth a thousand words
By admin
17 July 2024
RARE News
Challenges and priorities for the PSP and CBD community: Insights from Mark Jackson
By admin
12 July 2024
RARE News
The CMT Research Foundation to launch grant program to support young investigators working on CMT
By admin
12 July 2024
Charity & advocacy
Bridging gaps in care: How independent charitable patient assistance organisations support underserved populations
By admin
10 July 2024
RARE News
Concerned stakeholders issue call to action on the implementation of the EU Joint Clinical Assessment for ATMPs
By admin
9 July 2024
Industry Insights
What can rare disease services learn from oncology services? A personal reflection
By admin
1 July 2024
RARE News
International Neonatal Screening Day: A call for global implementation of neonatal screening programmes
By admin
28 June 2024
RARE News
PSPA event brings together families affected by progressive supranuclear palsy and corticobasal degeneration
By admin
25 June 2024
Letters
“Glass siblings”: an unnecessary label
By admin
24 June 2024
RARE News
Little Moments Matter: a new film from Dravet Syndrome UK marks Dravet Syndrome Awareness Day
By admin
24 June 2024
Turning the tide for rare disease
The UK General Election 2024: Ensuring rare diseases remain a priority
By admin
24 June 2024
RARE parenting
A road less travelled is no less worthy: A RARE mum’s reflections on special needs parenting
By admin
21 June 2024
RARE News
Cure GABA-A: A year of transformative impact in the GABAAR community
By admin
20 June 2024
Posts navigation
Older posts
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset
