RARE News

Myhre Syndrome Foundation awards $150,000 in grants

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3 March 2022

RARE News

Millions of people with rare diseases to benefit from faster diagnosis and better access to treatment

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2 March 2022

RARE News

THE TAPS SUPPORT FOUNDATION

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28 February 2022

RARE News

Teddington Trust and the XP Support Group to join forces to strengthen support for the xeroderma pigmentosum community

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15 February 2022

RARE News

The Neuromuscular Disease Foundation Takes the Lead

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4 February 2022

RARE News

The urgent case for patient assistance funding

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3 February 2022

RARE News

NORD’s RareLaunch Program Announces Expanded Course Learning to Help Launch and Grow Rare Disease Nonprofits

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20 January 2022

RARE News

RARE Revolution promotions announcement

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7 January 2022

Rare insights

Publication Finds that Modernization of U.S. Newborn Screening System is Necessary, Calls for Change

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6 January 2022

RARE News

Rare disease clinic for Poland Syndrome

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21 December 2021

RARE News

Foundation of the RE(ACT) Discovery Institute

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14 December 2021

RARE News

Sickle Cell Disease Association of America names Regina Hartfield CEO

By admin

10 December 2021

RARE News

Cambridge charity launches crowdfunding campaign to raise £30,000 for the first global AKU registry.

By admin

9 November 2021

RARE News

What is HH? Carrie Fulcher tells her story of finally discovering that she had a hypothalamic hamartoma

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30 October 2021

RARE News

Rare Community Network and Medics4RareDisease platform the underrepresented voices of the rare disease community for NHS England & Improvement meeting

By admin

26 October 2021

RARE News

Research Tools Matching Grant Program now accepting applications!

By admin

25 October 2021

Weblinks and references

Digital health revolution and its transformative potential for rare diseases – WEBLINKS AND REFERENCES

By admin

13 October 2021