RARE News

Mississippi becomes first state in 2022 to sign newborn screening legislation

By admin

17 March 2022

RARE News

New research released with recommendations for improving psychological support at the point of a rare disease diagnosis

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10 March 2022

RARE News

Myhre Syndrome Foundation awards $150,000 in grants

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3 March 2022

RARE News

Millions of people with rare diseases to benefit from faster diagnosis and better access to treatment

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2 March 2022

RARE News

THE TAPS SUPPORT FOUNDATION

By admin

28 February 2022

RARE News

Teddington Trust and the XP Support Group to join forces to strengthen support for the xeroderma pigmentosum community

By admin

15 February 2022

RARE News

The Neuromuscular Disease Foundation Takes the Lead

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4 February 2022

RARE News

The urgent case for patient assistance funding

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3 February 2022

RARE News

NORD’s RareLaunch Program Announces Expanded Course Learning to Help Launch and Grow Rare Disease Nonprofits

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20 January 2022

RARE News

RARE Revolution promotions announcement

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7 January 2022

Rare insights

Publication Finds that Modernization of U.S. Newborn Screening System is Necessary, Calls for Change

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6 January 2022

RARE News

Rare disease clinic for Poland Syndrome

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21 December 2021

RARE News

Foundation of the RE(ACT) Discovery Institute

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14 December 2021

RARE News

Sickle Cell Disease Association of America names Regina Hartfield CEO

By admin

10 December 2021

RARE News

Cambridge charity launches crowdfunding campaign to raise £30,000 for the first global AKU registry.

By admin

9 November 2021

RARE News

What is HH? Carrie Fulcher tells her story of finally discovering that she had a hypothalamic hamartoma

By admin

30 October 2021

RARE News

Rare Community Network and Medics4RareDisease platform the underrepresented voices of the rare disease community for NHS England & Improvement meeting

By admin

26 October 2021