A day in the life

Professional careers and rare disease – finding a balance that works

By CONTRIBUTOR

6 October 2021

RARE caregiving

Parenting superpower series – play listening

By CONTRIBUTOR

6 October 2021

RARE caregiving

Parenting superpower series – special time

By CONTRIBUTOR

6 October 2021

RARE caregiving

Parenting superpower series – loving limits

By CONTRIBUTOR

6 October 2021

Patient voice

Ataxia and us – Louise and Karls’ Story

By CONTRIBUTOR

20 September 2021

Patient voice

Mum of four children living with disabling rare neuromuscular disease GNEM raises awareness for foundation aiming to find a cure

By CONTRIBUTOR

20 September 2021

RARE caregiving

Parenting superpower series – the gift of listening partnerships

By CONTRIBUTOR

30 August 2021

Patient voice

World Hepatitis Day – Krista’s journey with drug-induced autoimmune hepatitis

By CONTRIBUTOR

26 July 2021

Medical

Zebras do exist: the diagnostic odyssey of rare disease patients

By CONTRIBUTOR

13 July 2021

Charity & advocacy

Celebrating a year of mental health support for men affected by rare conditions!

By CONTRIBUTOR

30 June 2021

Charity & advocacy

Why care for carers?

By CONTRIBUTOR

31 May 2021

Charity & advocacy

My journey with multiple sclerosis and advocacy

By CONTRIBUTOR

28 May 2021

Patient voice

Martha Harlam is on a mission and has high hopes for the future of ataxia

By CONTRIBUTOR

31 March 2021

Patient voice

Engagement through social support

By CONTRIBUTOR

29 January 2021

Medical

Phase 3 ‘Proof-HD’ trial begins in Europe for people with Huntington disease

By CONTRIBUTOR

28 January 2021

Science & tech

The transition to precision medicine “one size fits all” to “my medicine”

By CONTRIBUTOR

13 January 2021

Science & tech

Introducing our newest RARE Revolution columnist for our new #RARETech column

By CONTRIBUTOR

11 January 2021