Medical

Why the COVID-19 pandemic may be particularly challenging for families living with rare conditions

By CONTRIBUTOR

17 July 2020

Patient voice

Achalasia Action is shining a spotlight on a rare disease of the oesophagus: achalasia

By CONTRIBUTOR

15 July 2020

Medical

My reflections on COVID-19

By CONTRIBUTOR

10 July 2020

Charity & advocacy

“I Stay Home for RARE” financial assistance campaign launched by Living in the Light.

By CONTRIBUTOR

8 July 2020

Charity & advocacy

Kawasaki disease UK

By CONTRIBUTOR

1 July 2020

Charity & advocacy

Global Commission progresses technology health pilots to accelerate time to diagnosis for children with a rare disease

By CONTRIBUTOR

29 June 2020

Patient voice

National CMV Foundation – Amanda’s story

By CONTRIBUTOR

24 June 2020

Charity & advocacy

Nystagmus awareness day – 20 June 2020

By CONTRIBUTOR

17 June 2020

Medical

Danny’s Dose changing rules and saving lives

By CONTRIBUTOR

12 June 2020

Charity & advocacy

Welcome new boost for mums and dads of young children with albinism

By CONTRIBUTOR

11 June 2020

Charity & advocacy

Local charity thanks the north-east for the gift of time

By CONTRIBUTOR

5 June 2020

Charity & advocacy

My Little Lockdown Life created by Kate Read & Rebecca Atkinson

By CONTRIBUTOR

12 May 2020

Patient voice

EB World Congress—building on momentum and strength in numbers for epidermolysis bullosa

By CONTRIBUTOR

27 April 2020

Charity & advocacy

Making sense of the headlines: empowered and informed treatment choice in haemophilia

By CONTRIBUTOR

15 April 2020

Medical

With these feet? – A spotlight on young onset Parkinson’s disease

By CONTRIBUTOR

14 April 2020

Medical

Healx using artificial intelligence to find combination drug treatments for COVID-19

By CONTRIBUTOR

6 April 2020

A day in the life

Working from home top tips

By CONTRIBUTOR

23 March 2020