RARE News

RARE News

Project CASK Grant Program now accepting applications

By admin

18 January 2024

RARE News

International Kawasaki Disease Awareness Day: Special Podcast to Illuminate the Importance of Awareness

By admin

17 January 2024

RARE News

Benchmarking report published on “Early and Expanded Access Pathways in Ukraine, Poland, & the Baltic States”

By admin

10 January 2024

RARE News

UK charity PSPA raising awareness in news-style programme

By admin

10 January 2024

Industry Insights

UK report calls for more government input to make cell and gene therapies a true health system priority

By CONTRIBUTOR

9 January 2024

RARE News

IGA celebrates 30th anniversary in 2024

By admin

9 January 2024

Charity & advocacy

Davis Out of the Unknown: a family’s life with Koolen-de Vries Syndrome and their search for treatment

By CONTRIBUTOR

3 January 2024

RARE News

Sickle cell disease is not a joke

By admin

19 December 2023

RARE News

Sickle Cell Disease Association of America Inc. statement about gene therapy approval

By admin

15 December 2023

RARE Ramblings

Richard’s RARE Ramblings: Winter is coming… and I am ecstatic!

By CONTRIBUTOR

13 December 2023

RARE News

PSPA celebrates after receiving £164,000 National Lottery funding to help people living with PSP & CBD

By admin

13 December 2023

RARE News

Worthing couple take part in cooking challenge supported by celebrity chefs to raise funds for Muscular Dystrophy

By admin

8 December 2023

Science & tech

The Undiagnosed Diseases Network’s mission to eradicate the diagnostic odyssey: an interview with Sarah Marshall

By CONTRIBUTOR

6 December 2023

A day in the life

A day in the life: a medically complex condition that is as unpredictable as the weather

By CONTRIBUTOR

29 November 2023

Charity & advocacy

Thoughts into Action: What is quality of life as defined by people living with inherited metabolic disorders?

By CONTRIBUTOR

22 November 2023

RARE News

CureDuchenne raises more than $1.3 million at ninth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

By admin

16 November 2023

Charity & advocacy

Shining a light on Smith-Magenis syndrome

By CONTRIBUTOR

15 November 2023

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