RARE News

RARE News

NHL All-Star Ryan Getzlaf returns to the links for the 12th annual Getzlaf Golf Shootout on September 9 benefiting CureDuchenne

By admin

16 August 2023

Science & tech

Marie Curie: the inspiring legacy of a great woman of science and our RARE inspiration

By CONTRIBUTOR

16 August 2023

RARE News

IGA issues position statement on non-comparable medicines

By admin

15 August 2023

RARE News

Double dose of suffering: how the war in Ukraine has affected patients with rare diseases

By admin

14 August 2023

RARE Ramblings

Richard’s RARE Ramblings: accommodating for rare conditions

By CONTRIBUTOR

9 August 2023

RARE News

Landmarks illuminate pink and purple for National Eosinophilic Week

By admin

4 August 2023

Charity & advocacy

Creld1 Warriors—bringing the scientific and parent community together

By CONTRIBUTOR

2 August 2023

A day in the life

A day in the life: graduation day for Raymond Huml’s son, Jon

By CONTRIBUTOR

25 July 2023

RARE News

Pulitzer Prize-winning journalist Amy Dockser Marcus and Rebel Health author Susannah Fox to deliver keynotes at 12th annual RARE Advocacy Summit

By admin

19 July 2023

Charity & advocacy

Connie Montgomery’s late diagnosis with two rare diseases: factor VII deficiency and pemphigus vulgaris

By CONTRIBUTOR

19 July 2023

RARE News

RARE Health Equity Forum seeks to put ideas into action

By admin

12 July 2023

Industry Insights

The ABPI Code Partnership events: a step towards better partnerships?

By CONTRIBUTOR

12 July 2023

RARE News

Rare disease patient advocates gather in San Diego for a week of events to connect, learn, and empower

By admin

7 July 2023

Science & tech

LifeArc announces investment of more than £100 million into rare disease research by 2030

By CONTRIBUTOR

6 July 2023

RARE caregiving

The barista and the quiltmaker: life lessons from strangers

By CONTRIBUTOR

5 July 2023

RARE News

New online course for medics launched today: exploring mental health and rare disease

By admin

4 July 2023

RARE News

Sickle Cell Disease Association of America teams with MedicAlert Foundation to improve emergency outcomes during sickle cell crises

By admin

28 June 2023

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