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RARE News

RARE News

Mental health and care navigation top list of needs for people living with neurodegenerative diseases at Adira Foundation congress

By admin
28 March 2022

Turning the tide for rare disease

Time for action

By CONTRIBUTOR
28 March 2022

Turning the tide for rare disease

The Global Genes Rare Disease Equity, Diversity and Inclusion Report: the glimmers of hope

By CONTRIBUTOR
23 March 2022

Turning the tide for rare disease

Libmeldy gene therapy offers a lifeline to children with leukodystrophy and gives hope to the rare disease community

By CONTRIBUTOR
23 March 2022

RARE News

Mississippi becomes first state in 2022 to sign newborn screening legislation

By admin
17 March 2022

Turning the tide for rare disease

Turning the tide for adult polyglucosan body disease (APBD)

By CONTRIBUTOR
16 March 2022

Turning the tide for rare disease

The Global Genes Rare Disease Diversity, Equity and Inclusion Report: the challenges

By CONTRIBUTOR
16 March 2022

Turning the tide for rare disease

The healing power of storytelling

By CONTRIBUTOR
14 March 2022

Turning the tide for rare disease

Gillian Jackson: bringing positive energy and information to the online BBS community

By CONTRIBUTOR
11 March 2022

RARE News

New research released with recommendations for improving psychological support at the point of a rare disease diagnosis

By admin
10 March 2022

Charity & advocacy

The Vascular Birthmarks Foundation, Dr. Giacomo Colletti, Laserplast, and Candela collaborate to provide pro bono laser treatments

By CONTRIBUTOR
10 March 2022

Turning the tide for rare disease

How 10,000 people living with disability could end the foster care crisis

By CONTRIBUTOR
7 March 2022

RARE News

Myhre Syndrome Foundation awards $150,000 in grants

By admin
3 March 2022

RARE News

Millions of people with rare diseases to benefit from faster diagnosis and better access to treatment

By admin
2 March 2022

Turning the tide for rare disease

Brace! Brace! Brace… for burnout!

By CONTRIBUTOR
2 March 2022

RARE News

THE TAPS SUPPORT FOUNDATION

By admin
28 February 2022

Turning the tide for rare disease

Turning the tide for rare disease

By CONTRIBUTOR
28 February 2022
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