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RARE News
RARE News
Conference to pave the way for the next decade of rare diseases
By admin
11 May 2022
Turning the tide for rare disease
Beat SCAD’s passionate and persistent quest for answers for the spontaneous coronary artery dissection community
By CONTRIBUTOR
9 May 2022
Patient voice
A story of heartbreak and hope: Juju’s journey with CLN2 Batten disease
By CONTRIBUTOR
9 May 2022
Science & tech
Building a bridge between patient and pharma: the CMT story
By CONTRIBUTOR
9 May 2022
Turning the tide for rare disease
The Big Sunflower Project
By CONTRIBUTOR
2 May 2022
RARE News
National health charity CMTUK is to host annual conference on May 6th-7th
By admin
29 April 2022
Patient voice
The rare and wonderful opportunity of parenting a child with a RARE condition
By CONTRIBUTOR
29 April 2022
RARE News
Undiagnosed Day 2022
By admin
28 April 2022
Turning the tide for rare disease
A multi-centre registry for idiopathic pulmonary capillaritis
By CONTRIBUTOR
25 April 2022
Turning the tide for rare disease
Project Sebastian: a safe space for the rare disease community to talk, listen and connect
By CONTRIBUTOR
20 April 2022
Turning the tide for rare disease
The Akari Foundation – a light of hope for people with DMD in the Hispanic community
By CONTRIBUTOR
11 April 2022
RARE News
California mental health initiative to fight hidden sickle cell symptoms
By admin
8 April 2022
Turning the tide for rare disease
Riding the wave of medical research to find a cure for Ellie
By CONTRIBUTOR
6 April 2022
Rare insights
Medics4RareDiseases joins forces with Bionical Emas to launch new online training
By admin
5 April 2022
Patient voice
Redefine: Max Feinstein’s concept album inspired by his life with haemophilia
By CONTRIBUTOR
4 April 2022
Rare insights
National charity MPS Society encourages the public to spread awareness about rare genetic disease
By admin
4 April 2022
Medical
What can we learn from European rare disease policies to future-proof our health systems?
By CONTRIBUTOR
4 April 2022
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