RARE caregiving

RARE caregiving

A mum on a mission to make the world a more inclusive place for RARE children

By CONTRIBUTOR

7 October 2021

Patient voice

Reframing the conversation around grief

By CONTRIBUTOR

6 October 2021

A day in the life

Realising our workplace vision

By CONTRIBUTOR

6 October 2021

Patient voice

RARE Revolution’s bereavement survey

By CONTRIBUTOR

6 October 2021

A day in the life

RARE Employment Q&A with Police Inspector David Singleton

By CONTRIBUTOR

6 October 2021

A day in the life

Professional careers and rare disease – finding a balance that works

By CONTRIBUTOR

6 October 2021

RARE caregiving

Parenting superpower series – play listening

By CONTRIBUTOR

6 October 2021

RARE caregiving

Parenting superpower series – special time

By CONTRIBUTOR

6 October 2021

RARE caregiving

Parenting superpower series – loving limits

By CONTRIBUTOR

6 October 2021

RARE News

BBS UK participates in BBS global day to support individuals affected by Bardet Biedl syndrome

By admin

25 September 2021

Patient voice

Ataxia and us – Louise and Karls’ Story

By CONTRIBUTOR

20 September 2021

Patient voice

Mum of four children living with disabling rare neuromuscular disease GNEM raises awareness for foundation aiming to find a cure

By CONTRIBUTOR

20 September 2021

RARE News

Niemann-Pick UK are set to launch ‘Invisible Me’ campaign and short film ‘Invisible Manners’

By admin

14 September 2021

RARE caregiving

Parenting superpower series – the gift of listening partnerships

By CONTRIBUTOR

30 August 2021

RARE News

Michael McGrath – CEO of The Muscle Help Foundation discusses academic research with University of Hertfordshire

By admin

13 August 2021

Patient voice

World Hepatitis Day – Krista’s journey with drug-induced autoimmune hepatitis

By CONTRIBUTOR

26 July 2021

Medical

Zebras do exist: the diagnostic odyssey of rare disease patients

By CONTRIBUTOR

13 July 2021

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