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Turning the tide for rare disease
Turning the tide for rare disease
The Vascular Birthmarks Foundation: revolutionising awareness levels, access to treatments and physician education
By CONTRIBUTOR
26 May 2022
Turning the tide for rare disease
Saarah’s Foundation: a fitting legacy to Saarah Ahmed—daughter, sister, star student, aspiring neuroscientist, Miss Universe GB contestant and kEDS warrior
By CONTRIBUTOR
20 May 2022
Turning the tide for rare disease
The first step in advocacy is believing in the power of your own voice
By CONTRIBUTOR
16 May 2022
Turning the tide for rare disease
Beat SCAD’s passionate and persistent quest for answers for the spontaneous coronary artery dissection community
By CONTRIBUTOR
9 May 2022
Turning the tide for rare disease
The Big Sunflower Project
By CONTRIBUTOR
2 May 2022
Turning the tide for rare disease
A multi-centre registry for idiopathic pulmonary capillaritis
By CONTRIBUTOR
25 April 2022
Turning the tide for rare disease
Project Sebastian: a safe space for the rare disease community to talk, listen and connect
By CONTRIBUTOR
20 April 2022
Turning the tide for rare disease
The Akari Foundation – a light of hope for people with DMD in the Hispanic community
By CONTRIBUTOR
11 April 2022
Turning the tide for rare disease
Riding the wave of medical research to find a cure for Ellie
By CONTRIBUTOR
6 April 2022
Turning the tide for rare disease
Time for action
By CONTRIBUTOR
28 March 2022
Turning the tide for rare disease
The Global Genes Rare Disease Equity, Diversity and Inclusion Report: the glimmers of hope
By CONTRIBUTOR
23 March 2022
Turning the tide for rare disease
Libmeldy gene therapy offers a lifeline to children with leukodystrophy and gives hope to the rare disease community
By CONTRIBUTOR
23 March 2022
Turning the tide for rare disease
Turning the tide for adult polyglucosan body disease (APBD)
By CONTRIBUTOR
16 March 2022
Turning the tide for rare disease
The Global Genes Rare Disease Diversity, Equity and Inclusion Report: the challenges
By CONTRIBUTOR
16 March 2022
Turning the tide for rare disease
The healing power of storytelling
By CONTRIBUTOR
14 March 2022
Turning the tide for rare disease
Gillian Jackson: bringing positive energy and information to the online BBS community
By CONTRIBUTOR
11 March 2022
Turning the tide for rare disease
How 10,000 people living with disability could end the foster care crisis
By CONTRIBUTOR
7 March 2022
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