Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Industry insights
Letters
Medical
News
Patient voice
RARE caregiving
RARE ramblings
RARE REV-inar
Reviews
Science & tech
Sunday sessions
Turning the tide for rare disease
THE PEOPLE OF RARE
Digital Spotlight
RARE Reports
Resources
Charity Partners
WORK WITH US
Rare Revolutionaries
Community Gallery
Rare Youth
SHOP
Latest Edition
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Charity & advocacy
Charity & advocacy
ANGEL AID Unveils Raregivers™ Global Mental Health Initiative for Caregivers, Patients and Professionals
By CONTRIBUTOR
12 July 2022
RARE News
Gene People celebrates their first anniversary!
By admin
6 June 2022
RARE News
CureDuchenne hosts conversation with Pfizer to discuss opening of first U.S. sites in phase 3 trial of investigational gene therapy for ambulatory patients with Duchenne muscular dystrophy
By admin
26 May 2022
RARE News
Lace up to raise awareness of PSP and CBD: PSPA relaunches fun campaign to raise awareness of rare brain conditions progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD)
By admin
23 May 2022
RARE News
World Orphan Drug Alliance – combining forces to reach patients with rare diseases across the globe
By admin
23 May 2022
RARE News
The World Orphan Drug Congress USA Boston July 11-13
By admin
23 May 2022
RARE News
GARDIAN Registry for types 2 & 3 Gaucher disease is now open for registrations
By admin
17 May 2022
RARE News
Advocacy in Hemophilia Series: Event 1: Equity of Access in Hemophilia
By admin
12 May 2022
RARE News
Conference to pave the way for the next decade of rare diseases
By admin
11 May 2022
RARE News
National health charity CMTUK is to host annual conference on May 6th-7th
By admin
29 April 2022
RARE News
Undiagnosed Day 2022
By admin
28 April 2022
RARE News
California mental health initiative to fight hidden sickle cell symptoms
By admin
8 April 2022
RARE News
Global non-profit CureDuchenne announces futures national conference for the Duchenne muscular dystrophy community to be held May 27–29
By admin
1 April 2022
RARE News
Mental health and care navigation top list of needs for people living with neurodegenerative diseases at Adira Foundation congress
By admin
28 March 2022
RARE News
Mississippi becomes first state in 2022 to sign newborn screening legislation
By admin
17 March 2022
RARE News
New research released with recommendations for improving psychological support at the point of a rare disease diagnosis
By admin
10 March 2022
Charity & advocacy
The Vascular Birthmarks Foundation, Dr. Giacomo Colletti, Laserplast, and Candela collaborate to provide pro bono laser treatments
By CONTRIBUTOR
10 March 2022
« Previous
1
…
10
11
12
13
14
15
Next »
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset