RARE News

CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations

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16 February 2023

RARE News

Sure announced as headline sponsor for Parallel Windsor 2023

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13 February 2023

RARE News

Shining the light on tube feeding

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5 February 2023

RARE News

From SMA Europe: We are excited to announce that our OdySMA project is going live!

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1 February 2023

RARE News

Raising awareness and celebrating people with craniofacial differences

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24 January 2023

RARE News

RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience

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23 January 2023

RARE News

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

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20 January 2023

RARE News

Know your sickle cell trait status, according to new campaign

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20 January 2023

RARE News

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

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19 January 2023

RARE News

Rare Disease Innovation & Partnership Summit

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19 January 2023

RARE News

Cell & Gene Therapy Summit 2023

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18 January 2023

RARE News

PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community

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18 January 2023

RARE News

“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases

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6 January 2023

RARE News

The Waiting Room Entertainment’s efforts to bridge the communication gap between patients, organizations and the medical community

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3 January 2023

RARE News

CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

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8 December 2022

RARE News

NFL players spotlight Sickle Cell Disease Association of America

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7 December 2022

RARE News

DEBRA launches £5m fundraising appeal to stop the pain of EB

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16 November 2022