RARE News

CureDuchenne partners with PicnicHealth to advance research and simplify patient experience by incorporating electronic health records into data-integrated biobank 

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5 May 2023

RARE News

Specialty pharma expert adopts name of global parent to reflect breadth of offer that brings a rare and special perspective to the market

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2 May 2023

RARE News

PIP-UK Poland syndrome charity launches new podcast series: What about PS? A Poland Syndrome Podcast

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30 April 2023

RARE News

Survey shows 60% of people living with progressive supranuclear palsy and corticobasal degeneration are initially misdiagnosed

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28 April 2023

RARE News

What is Quality of Life (QoL) for people living with a rare disease?  

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24 April 2023

RARE News

National health charity, CMTUK, is to host Charcot-Marie-Tooth conference on 21–22 April 2023

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21 April 2023

RARE News

May Movement Challenge – Free adaptive and accessible online exercise

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17 April 2023

RARE News

8th annual RARE Drug Development Symposium – May 1-3, 2023

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7 April 2023

RARE News

Rare disease warrior Pamela Price ran 340 miles from LA to Las Vegas with Team Unlimited Women

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28 March 2023

RARE News

The Patient Centricity & Engagement Conference – 10th May – London

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17 March 2023

RARE News

The Pharma Social Media Conference – 11th May – London

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17 March 2023

RARE News

Sickle Cell Disease Association of America to promote clinical trials

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16 March 2023

RARE News

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

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28 February 2023

RARE News

Operationalize: Expanded Access Programs Summit (March 21-23, 2023, Boston, MA)

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24 February 2023

RARE News

Celebrating Rare Disease Day and 40 years of the Orphan Drug Act advocating for rare disease patients and their families

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22 February 2023

RARE News

Project Sebastian is pleased to announce our second annual rare warrior 5 x 5 challenge!

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17 February 2023

RARE News

Three small research grants awarded

By admin

17 February 2023